May 12th, officially marks the World Fibromyalgia and Myalgic Encephalo-myelitis/Chronic Fatigue Syndrome Awareness Day, although other Central Sensitization Syndromes have been included, such as Multiple Chemical Sensitivity and Electro-Hypersensitivity.

The date of May 12 was chosen in memory of the nurse Florence Nightingale (born 12 May 1820), founder of the first modern school of nursing and who fought for the rights of people who suffered disabilities in the Crimea War.
It is thought that Florence Nightingale suffered from fibromyalgia or chronic fatigue syndrome for much of her life.
In tribute to this pioneer of modern nursing, May 12 also marks the International Day of Nurses.

Currently, both fibromyalgia and CFS/ME are included in Central Sensitization Syndromes, a relatively recent concept that encompasses other processes such as multiple chemical sensitivity and electrohypersensitivity, as well as restless legs syndrome, irritable bowel syndrome, etc., many of them related to each other but with their coding and their own characteristics.

Fibromyalgia (FM) is characterized by generalized pain, which can be constant or fluctuating, affecting mainly muscles and tendons, without any apparent injury being observed. This pain can be very severe and is often accompanied by unrefreshing sleep, extreme tiredness, headaches, and cognitive disorders, among other symptoms.

Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) causes significant and persistent fatigue after small efforts, both physical and mental, that worsens with activity and does not improve with rest. It often also causes a decrease in cognitive performance, insomnia and non-restful sleep, muscle and / or joint pain, among other symptoms.

Multiple chemical sensitivity is the loss of tolerance to chemical substances present in the environment (fuels, solvents, pesticides ...) and commonly used products (air fresheners, disinfectants, perfumes, softeners ...), which manifests itself with symptoms in different organs and systems, when exposed to small amounts of various chemical agents.

Electrohypersensitivity is intolerance to the electromagnetic fields found in our environment (mobile telephony, Wi-Fi, high-voltage lines ...) and causes symptoms of different intensity in affected people, to the point of damaging their professional, academic and familiar life.

These are diseases that affect different body systems and cause, among other symptoms, an increased sensitivity to environmental factors. These are illnesses of irregular evolution, which can cause that sometimes people can maintain their day-to-day life normally and that, at other times, pain, tiredness or hypersensitivity becomes incapacitating and prevents them from living a normal life.

The symptoms are not visible, but the impact on the lives of people who suffer from them is devastating. Their quality of life is diminished and they often suffer misunderstanding in the family, social, school, work and health environment. In the most extreme cases, affected people are forced to stay home. These are emerging diseases that increasingly affect more population, and also younger.

By improving prevention and avoiding the use of toxic and polluting agents and exposure to harmful electromagnetic fields, we will benefit the health of affected people and of all citizens.

ACAF was the first association in Catalonia constituted with people affected by these diseases, working together with the Plataforma FAMILIARS FM-SFC-SQM.

For several years, on the FM and CFS/ME Awareness Day, orange ribbons were distributed as a color linked to the demand for equal opportunities for people with disabilities; since, internationally, it's been established the ribbon went dark blue or purple as a symbol of these syndromes, without having finished defining a color that embraces all. Generally, we might find more purple or purple ribbon tie to FM, and blue (in various shades) more linked to CFS/ME. Regarding MCS, yellow, green or a combination of yellow and green ribbons have been used.

In 2005, in order to keep the meaning of the first ribbon that we used while we were adopting the blue colors that were used in other countries, the image of a blue ribbon on an orange background was designed to represent both.

In the commemorative acts of the FM and CFS/ME (and also of MCS and EHS) Awareness Day, as well as in other events of dissemination and social awareness, these ribbons are distributed between citizens, in order to give more visibility to these syndromes and in order to ask for a gesture of solidarity and support for the people affected.

In accordance with the precautionary principle and in order to contribute to the prevention and containment of the SARS-CoV-2 coronavirus, which causes the Covid-19 respiratory infection, ACAF suspended its regular face-to-face activities (mutual aid groups, workshops, talks, etc.) and scheduled face-to-face public events (seminars and conferences) in March 2020. In the first months of 2022, face-to-face activities began to be resumed in some territorial areas. However, during this time, ACAF has adapted its programme of activities to online participation, with the most complete programme of online activities specifically for people affected by these diseases, with functional recovery workshops, cognitive stimulation workshops, conferences and symposiums, information of interest to the group (magazine on the diseases Biorritmes, publications, articles, audio and video about the diseases, etc.), etc. The programme includes activities from Monday to Saturday, in the mornings and afternoons, to facilitate participation.

Despite the exceptional circumstances, the ACAF has continued to work to improve the quality of life for those affected:

- offering attention, information and guidance by phone, email and social networks

- adapting its activity to bring it closer to sick people in confinement

- transferring relevant and interesting information for the collective of people affected by central sensitizacion syndromes

- with the Department of Health of the Government of Catalonia for the improvement of care for affected people (social and health care, PPE, etc.)

- with companies and professionals, to achieve economic and logistical advantages for those affected in confinement.

On a day like today we again appeal to the empathy of people, civil society and administrations to adhere to this day, to better understand the complexity of what lives and suffers more than 3% of the population in Catalonia , in order to advance in the knowledge, prevention and sanitary and social approach to these diseases.

Although every day we count with more support from the administration and many health professionals, we still have a lot of work to do so that people affected by Central Sensitization Syndromes have the medical care, social recognition and support that they need, so that they can achieve the best possible quality of life. Surely, joining efforts, we can continue to advance on this path of normalization and recognition.

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COMMUNICATION AND AWARENESS EVENTS:

This year we are planning a new edition of the social awareness campaign, #CatalunyadeBlau, which we hope to be able to complement with the support of some face-to-face information points. The work of information, dissemination, social awareness and visibility that we carry out does not stop; you can see some of the events that we are organising in the section events and conferences scheduled on our website:

 

AWARENESS CAMPAIGN

#CatalunyadeBlau 2023

On the occasion of the commemoration of the World Day of the diseases, once again this year, together with the Plataforma de Familiares FM-SFC-SQM, we promote the awareness and social awareness campaign #CatalunyadeBlau, so that many places in the country, as in some territories of Catalan culture, illuminate in blue in order to give visibility to the diseases and in solidarity with the people affected.

This year we hope to surpass the more than 100 members that #CatalunyadeBlau had last year. The following municipalities and institutions have already confirmed their participation for this year 2023 (the list will be updated as confirmations are received):

1. Abrera: Casa de la Vila
2. Amposta: Mercat Municipal
3. Andorra La Vella: Campanar de l’església de Sant Esteve
4. Arbúcies: Can Delfí (actual Casa de la Vila)
5. Arenys de Mar: Casa de la Vila
6. Argentona: Campanar de l'església de Sant Julià
7. Badalona: edifici Capitania del Port de Badalona
8. Balaguer: Paeria de Balaguer
9. Banyeres del Penedès: Casa Consistorial
10. Banyoles: Casa de la Vila
11. Barberà del Vallès: Casa de la Vila
12. Barcelona: Casa de la Ciutat
13. Barcelona: Centre Comercial Diagonal Mar
14. Barcelona: Centre Comercial Les Arenes
15. Barcelona: Gran Teatre del Liceu
16. Barcelona: Museu Marítim i Muralles de les Drassanes
17. Barcelona: Palau de la Generalitat
18. Barcelona: Palau Robert
19. Barcelona: Teatre Nacional de Catalunya
20. Barcelona: Torre de Collserola
21. Barcelona: Torre Glòries
22. Barcelona: Universitat de Barcelona (Edifici Històric)
23. Bellcaire d'Urgell: Casa de la Vila
24. Bellver de Cerdanya: Muralla
25. Bellpuig d'Urgell: Edifici municipal
26. Besalú: Casa de la Vila
27. Begues: Casa Consistorial
28. Begur: Castell de Begur i l'Església de Sant Esteve d'Esclanyà
29. Berga: Casa de la Vila
30. Blanes: Casa Consistorial
31. Bolvir: Casa Consistorial
32. Cabra del Camp: Casa de la Vila
33. Cabrils: Casa de la Vila
34. Calafell: Castell de Calafell
35. Caldes d'Estrac: Casa de la Vila
36. Caldes de Malavella: Estàtua de la rotonda d'entrada al municipi
37. Calella: Casa de la Vila
38. Cambrils: Fanals blaus a la Platja del Regueral
39. Calonge i Sant Antoni: Indrets emblemàtics del municipi
40. Canet de Mar: Biblioteca Pere Gual, La Masoveria i altres edificis municipals
41. Canovelles: Centre Cultural, Teatre-Auditori i font de la Plaça Núria Miralles
42. Castell-Platja d'Aro: Casa de la Vila
43. Castellar del Vallès: Rotonda de Castellar
44. Castelldefels: Casa de la Vila i font de l’Avinguda de La Pineda
45. Celrà: Teatre Municipal
46. Cervera: Campanar de l’església de Santa Maria de Cervera
47. Cistella: Casa de la Vila
48. Ciutadella de Menorca: Antic Palau del Governador (actual Casa de la Vila)
49. Cornellà de Llobregat: Casa Consistorial i Torre de la Miranda
50. Creixell: Casa de la Vila
51. Cubelles: Castell de Cubelles
52. Cunit: Casa de la Vila
53. Deltebre: Pont Lo Passador
54. Eivissa: Passeig de Vara de Rey
55. El Vendrell: Campanar de l'església del Vendrell
56. Falset: Casa de la Vila
57. Figueres: Teatre Municipal El Jardí
58. Gandesa: Casa de la Vila
59. Gavà: Ésser del Mil·lenni
60. Gelida: Campanar de l'església
61. Gualta: Casa de la Vila
62. Guissona: Casa de la Vila
63. Hospitalet de Llobregat: Casa de la Vila
64. Igualada: Casa de la Vila
65. Juncosa de Montmell: Casa Consistorial
66. L'Aldea: Casa de la Vila
67. L'Ametlla del Vallès: Casa Consistorial
68. L'Arboç: Casa Consistorial
69. La Bisbal del Penedès: Casa Consistorial
70. La Garriga: Casa Consistorial
71. La Pobla de Lillet: Casa de la Vila
72. La Ràpita: Església Nova
73. La Seu d'Urgell: Casa de la Vila
74. Les Borges Blanques: Palau del Marquès d'Olivart (actual Casa de la Vila)
75. Lleida: Ponts i Paeria de Lleida
76. Lloret de Mar: Casa Consistorial
77. Malgrat de Mar: Lletres gegants del municipi
78. Manresa: Casa de la Vila
79. Martorell: Pont Anoia
80. Matadepera: Casa de la Vila
81. Mataró: Casa de la Vila
82. Mollet del Vallès: Museu Abelló
83. Mont-roig del Camp: Casa de Cultura i rotonda entrada Miami Platja
84. Montblanc: Muralla de Montblanc
85. Montgat: Casa de la Vila
86. Mora d'Ebre: Casa Consistorial
87. Navarcles: Casa de la Vila
88. Olesa de Bonesvalls: Casa de la Vila
89. Olesa de Montserrat: Torre del Rellotge
90. Olot: Plaça Clarà
91. Palafrugell: Casa de la Vila
92. Palamós: Casa de la Vila i indrets institucionals del municipi
93. Palau d’Anglesola: Campanar de l’església de Sant Joan Baptista i Casa de la Vila
94. Palau-solità i Plegamans: Casa de la Vila
95. Palma de Mallorca: Caixa Fòrum
96. Palma de Mallorca: Cort
97. Pals: Vaixell de la rotonda sud
98. Parets del Vallès: Casa de la Vila
99. Piera: Entrades del municipi
100. Pineda: Lletres del municipi al Passeig de Mar
101. Polinyà: Porxada de la Plaça de la Vila i reproducció de la bomba de l'Avinguda de Sentmenat
102. Port de la Selva: Església de la Nostra Senyora de les Neus
103. Premià de Dalt: Casa Consistorial i xemeneia de la fàbrica
104. Puigcerdà: Casa de la Vila i Campanar de Santa Maria
105. Reus: Gaudí Centre i fonts de la ciutat
106. Ripoll: Casa de la Vila
107. Riudoms: Casa de la Vila
108. Roda de Berà: Casa de la Vila
109. Roses: Casa Consistorial
110. Rubí: Casa Consistorial
111. Sabadell: Casa de la Vila
112. Sallent: Casa de la Vila
113. Salou: Casa Consistorial
114. Sant Adrià de Besòs: Casa de la Vila
115. Sant Bartomeu del Grau: Casa de la Vila
116. Sant Cebrià de Vallalta: Església de Sant Cebrià
117. Sant Cugat del Vallès: Casa de la Vila
118. Sant Hilari Sacalm: Espai municipal
119. Sant Llorenç d'Hortons: Casa Consistorial
120. Sant Martí Sarroca: Casa Consistorial
121. Sant Pere de Ribes: Casa de la Vila i edifici institucional de la Vinya d’en Petaca
122. Sant Pere de Riudebitlles: Casa de la Vila
123. Sant Sadurní d'Anoia: Casa de la Vila
124. Sant Vicenç de Montalt: Rotondes del Pont de la Xata i Can Muntaner
125. Sant Vicenç de Taüll: Església de Sant Climent de Taüll
126. Santa Coloma de Gramenet: Casa de la Vila
127. Santa Margarida i els Monjos: Biblioteca Municipal
128. Santa Maria de Palautordera: Casa de la Vila
129. Santa Oliva: Casa Consistorial
130. Santpedor: Capella de Sant Andreu
131. Sarral: Casa de la Vila
132. Sarrià de Ter: Casa de la Vila
133. Sentmenat: Casa de la Vila
134. Sitges: Església de Sant Sebastià
135. Solsona: Casa de la Ciutat
136. Sort: Església de Sort
137. Súria: Casa de la Vila
138. Taradell: Dipòsit de Can Costa
139. Tarragona: Palau Municipal, Torre dels Vents i Edifici Jove Kesse
140. Tàrrega: Font del Pati
141. Terrassa: Casa de la Vila
142. Tordera: Fonts de la Plaça de la Concòrdia
143. Tortosa: Pont de Tortosa
144. Torrelles de Foix: indrets del municipi
145. Tossa de Mar: Museu Municipal de Tossa (MMdT)
146. Tremp: Casa Consistorial i dues rotondes del municipi
147. Vallirana: Casa de la Vila
148. Vielha e Mijaran: Campanar de l'església de Sant Miquel
149. Vic: Casa de la Vila
150. Vila-seca: Casa Consistorial
151. Viladrau: Casa de la Vila engalanada de blau
152. Vilanova del Camí: Casa de la Vila
153. Vilanova i la Geltrú: Casa de la Vila
154. Vilaplana: Casa de la Vila
155. Vilassar de Mar: Casa de la Vila

Some municipalities and institutions that for various reasons do not have lighting equipment will join the campaign with other actions and by publicising it on their social networks:

· La Bisbal d'Empordà
· Borredà
· Cadaqués
· Canyelles
· Consorci de la Colònia Güell
· Diputació de Barcelona
· Diputació de Girona
· Diputació de Tarragona
· Esparreguera
· Girona
· Manlleu
· Martorelles
· Moià
· Palau de la Música Catalana
· Pallejà
· Sant Celoni
· Sant Feliu de Guíxols
· Sant Miquel de Balenyà
· Sant Pol de Mar
· Santa Coloma de Cervelló
· Torelló

Some places and institutions in Spain, in response to our call, have also wanted to give visibility to their solidarity with our collective and will light up in blue on May 12th:

· Congreso de los Diputados (Madrid)
· Málaga: Ayuntamiento
· Palacio del Senado (Madrid)

If you are from a municipality, organism or institution interested in collaborating in this campaign, please contact us by email at catalunyadeblau@fibromialgia.cat to give visibility to your gesture of solidarity.

If you have joined the campaign, or if you want to collaborate by giving it VISIBILITY, we would be grateful if you could spread the word on your websites and/or social networks:

- Using some of the hashtags that we will use for communications in the networks:
#CatalunyadeBlau #DiaMundialFMiSFC #DiaMundialFibromiàlgia #WorldMEDay
#Fibromiàlgia #SFCem #SQM #EHS #SSC #VISIBILITY #12M

- tagging or quoting the promoting associations, in order to spread it on websites and social networks, as well as to the people associated with our organisations:

	fibromialgia.cat			plataformafamiliars.org
	facebook.com/ACAF.ssc			fb.com/familiars.fmsfcsqm
	twitter.com/ACAFssc			twitter.com/familiarsfmsfc
	instagram.com/acaf.ssc			instagram.com/familiars.fmsfc
	youtube.com/@ACAFssc

Thanks for your collaboration!  

#WorldMEDay

Both the Plataforma Familiars FM-SFC-SQM and the ACAF are founding entities of the World Alliance for ME, a unique alliance of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis organizations from around the world. Member associations and foundations are national entities representing affected people, working together to bring about change for people with CFS/ME at the national and international level.

The World Alliance for ME is a global communication space for organizations to share knowledge, experience and challenges faced in their countries. Keeping in mind that the approach to CFS/ME treatment and research varies widely around the world, the Alliance prioritizes the space to foster communication and mutual learning.

On May 12, on the occasion of the commemoration of the World Day of the disease, the global campaign #LearnFromME has been launched, with the aim of sharing the experience of affected people, of what is learned with such a disabling and under-recognized disease as CFS/ME.

As part of the campaign, affected people are asked to design their own poster, explaining what they have learned from living with the disease that can help other affected people and/or those around them, as well as people who work or live with an affected person,and then post these posters on social networks and share their experience. The posters can be customized, and templates have been prepared in different languages.

 

To see all the actions you can take to collaborate in this campaign follow this link:

https://worldmealliance.org/worldmeday/

_________________________________________________________________________________________

AWARENESS CAMPAIGN

#CatalunyadeBlau 2022

On the occasion of the commemoration of the World Day of the Diseases, once again this year, together with the Plataforma de Familiares FM-SFC-SQM, we have promoted the awareness and social awareness campaign #CatalunyadeBlau, so that many places in the country, as in some territories of Catalan culture, are illuminated in blue in order to give visibility to the diseases and in solidarity with the people affected. In some municipalities where there is no lighting, they also show their solidarity with various actions (banners, dissemination on social networks...).

This year we have more than 100 supports of the 41 counties of Catalonia and Aran, as well as Andorra, Palma de Mallorca, Ciutadella de Menorca and Ibiza. In addition, it has been confirmed that the Congress of Deputies and the Senate in Madrid will be lit up in blue. In Catalonia, the following municipalities and institutions will participate, lighting up buildings and emblematic places (the list will be updated as confirmations are received):

· Amposta: Mercat Municipal
· Andorra la Vella: Església de Sant Esteve
· Arbúcies: Edifici de Can Delfí
· Arenys de Mar: Casa de la Vila
· Balaguer: Paeria de Balaguer
· Banyoles: Casa de la Vila
· Barcelona: Basílica de la Sagrada Família
· Barcelona: Casa de la Ciutat
· Barcelona: Centre Comercial Les Arenes
· Barcelona: Diputació de Barcelona (Edifici Can Serra)
· Barcelona: Fonts de la ciutat
· Barcelona: Gran Teatre del Liceu
· Barcelona: Museu Marítim i Muralles de les Drassanes
· Barcelona: Palau de la Generalitat
· Barcelona: Palau Robert
· Barcelona: Teatre Nacional de Catalunya
· Barcelona: Temple del Sagrat Cor del Tibidabo
· Barcelona: Torre Glòries
· Begues: Casa Consistorial
· Begur: Castell de Begur i esglèsia de Sant Esteve d'Esclanyà
· Bellcaire d'Urgell: Casa de la Vila
· Bellpuig: Casa de la Vila
· Berga: Casa de la Vila
· Besalú: Casa de la Vila
· Blanes: Casa Consistorial
· Cabra del Camp: Plaça de l'Ajuntament
· Calafell: Castell de Calafell
· Caldes de Malavella: Font
· Canet de Mar: Casa de la Vila, Biblioteca Pere Gual i Pujadas, La Masoveria (CC Vil·la Florida)
· Canovelles: Centre Cultural, Edifici del Teatre-Auditori i la Font de la Plaça Núria Miralles
· Castellar del Vallès: Rotonda de Castellar
· Castelldefels: Casa de la Vila i font de l’Avinguda de La Pineda
· Cervera: Campanar de l’església de Santa Maria de Cervera
· Cistella: Església de Santa Maria de Cistella
· Ciutadella de Menorca: Ajuntament - antic Palau del Governador
· Cornellà de Llobregat: Torre de la Miranda
· Cubelles: Església i Castell de Cubelles
· Cunit: Casa de la Vila
· Deltebre: Pont "Lo Passador"
· Eivissa: Passeig de Vara de Rey
· El Vendrell: Campanar de l'església del Vendrell
· Esparreguera: Casa de la Vila
· Falset: Casa de la Vila
· Figueres: Teatre Municipal El Jardí
· Gandesa: Casa de la Vila
· Gavà: Ésser del Mil·leni
· Gelida: Casa Consistorial
· Girona: Palau de la Diputació de Girona
· Gualta: Casa Consistorial
· Guissona: Casa de la Vila
· Hospitalet de Llobregat: Casa de la Vila
· Igualada: Casa de la Vila
· L'Ametlla del Vallès: Casa Consistorial
· La Bisbal del Penedès: Casa Consistorial
· La Garriga: Casa Consistorial
· La Seu d'Urgell: Casa de la Vila
· Les Borges Blanques: Palau dels Marquesos d'Olivart
· Lleida: Ponts i Paeria de Lleida
· Lloret de Mar: Casa Consistorial
· Manresa: Casa de la Vila
· Martorell: Pont d'Anoia
· Matadepera: Indrets emblemàtics del municipi
· Mataró: Casa de la Vila
· Mollerussa: Casa de la Vila
· Montblanc: Muralles de Montblanc
· Mora d'Ebre: Casa Consistorial
· Olesa de Montserrat: Torre del Rellotge
· Palafrugell: Casa de la Vila
· Palamós: Casa de la Vila i indrets institucionals del municipi
· Palma de Mallorca: Cort
· Pals: Rotonda del Vaixell
· Piera: Rotondes del municipi
· Pobla de Lillet: Casa de la Vila
· Polinyà: Porxada de la Plaça de la Vila i reproducció de la bomba de l'Avinguda de Sentmenat
· Premià de Dalt: Xemeneia de la Fàbrica
· Puigcerdà: Casa de la Vila
· Reus: Font de la Plaça del Nen de les Oques i Gaudí Centre
· Roses: Casa Consistorial
· Ripoll: Casa de la Vila
· Sabadell: Fonts de la ciutat
· Salou: Casa Consistorial
· Sant Adrià de Besòs: Casa Consistorial
· Sant Cugat del Vallès: Casa de la Vila
· Sant Feliu de Guíxols: Arc de Sant Benet
· Sant Hilari Sacalm: Casa de la Vila
· Sant Llorenç d'Hortons: Casa Consistorial
· Sant Pere de Ribes: Castell de Ribes
· Santa Coloma de Gramenet: Fonts de la ciutat
· Santa Margarida i Els Monjos: Biblioteca Municipal
· Santpedor: Capella de Sant Andreu
· Sentmenat: Casa de la Vila
· Sitges: Ermita de Sant Sebastià
· Solsona: Casa de la Ciutat
· Sort: Espai emblemàtic municipal
· Tarragona: Palau Municipal i Torre dels Vents
· Tarragona: Palau de la Diputació de Tarragona
· Tàrrega: Font del Pati
· Terrassa: Casa de la Vila i Monument a la Dona
· Tordera: Fonts de la Plaça de la Concòrdia
· Tremp: Casa Consistorial
· Vall de Boí: Església de Sant Climent de Taüll
· Vic: Casa de la Vila
· Vielha e Mijaran: Campanar de l'església de Sant Miquel
· Vila-seca: Casa Consistorial
· Viladecans: Casa de la Vila

Some municipalities and institutions that for various reasons do not have lighting equipment will join the campaign with other actions and by publicising it on their social networks:

· La Bisbal d'Empordà
· Cadaqués
· Canyelles
· Diputació de Girona
· Esparreguera
· Girona
· Manlleu
· Martorelles
· Palau de la Música Catalana
· Sant Pol de Mar

If you are from a municipality or institution interested in collaborating in this campaign, please contact us by email at catalunyadeblau@fibromialgia.cat to give visibility to your gesture of solidarity.

If you have joined the campaign, or if you want to collaborate by giving it VISIBILITY, we would be grateful if you could spread the word on your websites and/or social networks:

- Using some of the hashtags that we will use for communications in the networks:
#CatalunyadeBlau #DiaMundialFMiSFC #DiaMundialFibromiàlgia #WorldMEDay
#Fibromiàlgia #SFCem #SQM #EHS #SSC #VISIBILITY #12M

- tagging or quoting the promoting associations, in order to spread it on websites and social networks, as well as to the people associated with our organisations:

	fibromialgia.cat			plataformafamiliars.org
	facebook.com/ACAF.ssc			fb.com/familiars.fmsfcsqm
	twitter.com/ACAFssc			twitter.com/familiarsfmsfc
	instagram.com/acaf.ssc			instagram.com/familiars.fmsfc
	youtube.com/c/ACAFssc

_________________________________________________________________________________

#WorldMEDay

Both the Plataforma Familiars FM-SFC-SQM and the ACAF are founding entities of the World Alliance for ME, a unique alliance of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis organizations from around the world. Member associations and foundations are national entities representing affected people, working together to bring about change for people with CFS/ME at the national and international level.

The World Alliance for ME is a global communication space for organizations to share knowledge, experience and challenges faced in their countries. Keeping in mind that the approach to CFS/ME treatment and research varies widely around the world, the Alliance prioritizes the space to foster communication and mutual learning.

On May 12, on the occasion of the commemoration of the World Day of the disease, the global campaign #LearnFromME has been launched, with the aim of sharing the experience of affected people, of what is learned with such a disabling and under-recognized disease as CFS/ME.

As part of the campaign, affected people are asked to design their own poster, explaining what they have learned from living with the disease that can help other affected people and/or those around them, as well as people who work or live with an affected person,and then post these posters on social networks and share their experience. The posters can be customized, and templates have been prepared in different languages.

 

To see all the actions you can take to collaborate in this campaign follow this link:

https://worldmealliance.org/worldmeday/

_______________________________________________________________________________________

#CatalunyadeBlau 2021

On the occasion of the commemoration of World Awareness Day, together with the FM-CFS-MCS Relatives Platform, we promoted the social awareness campaign #CatalunyadeBlau to illuminate many places in blue in order to give visibility to the diseases and in solidarity with the people affected. In some municipalities that did not have lighting, also showed their solidarity with various actions (ties, banners, social networks ...).

In 2021, among others, the following municipalities and institutions joined the campaign:

Amposta, Artés, Balaguer, Banyeres del Penedès, Banyoles, Barcelona, Bellpuig, Berga, Besalú, Calaf, Calafell, Callús, Capellades, Cardona, Cassà de la Selva, Castellar del Vallès, Celrà, Cervera, Cornellà de Llobregat, Cubelles, Deltebre, El Pont de Suert, El Vendrell, Falset, Figueres, Girona, Hospitalet de Llobregat, Igualada, L'Ametlla del Vallès, L'Arboç, La Bisbal d’Empordà, La Bisbal del Penedès, La Roca del Vallès, La Vall de Boí, La Seu d'Urgell, Les Borges Blanques, Linyola, Lleida, Malgrat de Mar, Manlleu, Manresa, Masquefa, Mataró, Moià, Molins de Rei, Mollerussa, Montblanc, Montmell, Móra d'Ebre, Navarcles, Navàs, Òdena, Olèrdola, Olesa de Montserrat, Olot, Palafrugell, Palamós, Palau-solità i Plegamans, Piera, Puigcerdà, Reus, Ripoll, Roda de Berà, Sabadell, Sallent, Sant Adrià de Besòs, Sant Cugat del Vallès, Sant Feliu de Guíxols, Sant Feliu de Llobregat, Sant Fruitós de Bages, Sant Joan de Vilatorrada, Sant Llorenç d'Hortons, Sant Martí Sarroca, Sant Miquel de Balenyà, Sant Pere de Riudebitlles, Sant Sadurní d’Anoia, Santa Bàrbara, Santa Coloma de Farners, Santa Margarida i els Monjos, Santa Oliva, Santpedor, Sarral, Sitges, Solsona, Sort, Súria, Tarragona, Tàrrega, Terrassa, Torrelavit, Torroella de Montgrí, Tortosa, Tremp, Valls, Vic, Vielha e Mijaran, Vilanova del Camí, Vilanova i la Geltrú

Gran Teatre del Liceu, Teatre Nacional de Catalunya, Il·lustre Col·legi de l'Advocacia de Barcelona, Diputació de Girona, Diputació de Tarragona
Palau de la Generalitat i Palau Robert - Generalitat de Catalunya

Also adhered Centre Comercial Arenas de Barcelona

To all those who join this campaign:

THANK YOU SO MUCH!

#CatalunyadeBlau 2021

#CatalunyadeBlau
#DiaMundialFibromialgia #DiaMundialFMySFC #DiaMundialSSC
#Fibromialgia #SFCem #SQM #EHS #SSC #ACAF

 

 

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