MAY 12th
International Fibromyalgia and ME/CFS
and other CSS (MCS-EHS) Awareness Day


    

Dia Mundial FM-SFC 2018

 

May 12th, officially marks the World Fibromyalgia and Myalgic Encephalo-myelitis/Chronic Fatigue Syndrome Awareness Day, although other Central Sensitization Syndromes have been included, such as Multiple Chemical Sensitivity and Electro-Hypersensitivity.

The date of May 12 was chosen in memory of the nurse Florence Nightingale (born 12 May 1820), founder of the first modern school of nursing and who fought for the rights of people who suffered disabilities in the Crimea War.
It is thought that Florence Nightingale suffered from fibromyalgia or chronic fatigue syndrome for much of her life.
In tribute to this pioneer of modern nursing, May 12 also marks the International Day of Nurses.

Currently, both fibromyalgia and CFS/ME are included in Central Sensitization Syndromes, a relatively recent concept that encompasses other processes such as multiple chemical sensitivity and electrohypersensitivity, as well as restless legs syndrome, irritable bowel syndrome, etc., many of them related to each other but with their coding and their own characteristics.

Fibromyalgia (FM) is characterized by generalized pain, which can be constant or fluctuating, affecting mainly muscles and tendons, without any apparent injury being observed. This pain can be very severe and is often accompanied by unrefreshing sleep, extreme tiredness, headaches, and cognitive disorders, among other symptoms.

Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) causes significant and persistent fatigue after small efforts, both physical and mental, that worsens with activity and does not improve with rest. It often also causes a decrease in cognitive performance, insomnia and non-restful sleep, muscle and / or joint pain, among other symptoms.

Multiple chemical sensitivity is the loss of tolerance to chemical substances present in the environment (fuels, solvents, pesticides ...) and commonly used products (air fresheners, disinfectants, perfumes, softeners ...), which manifests itself with symptoms in different organs and systems, when exposed to small amounts of various chemical agents.

Electrohypersensitivity is intolerance to the electromagnetic fields found in our environment (mobile telephony, Wi-Fi, high-voltage lines ...) and causes symptoms of different intensity in affected people, to the point of damaging their professional, academic and familiar life.

These are diseases that affect different body systems and cause, among other symptoms, an increased sensitivity to environmental factors. These are illnesses of irregular evolution, which can cause that sometimes people can maintain their day-to-day life normally and that, at other times, pain, tiredness or hypersensitivity becomes incapacitating and prevents them from living a normal life.

The symptoms are not visible, but the impact on the lives of people who suffer from them is devastating. Their quality of life is diminished and they often suffer misunderstanding in the family, social, school, work and health environment. In the most extreme cases, affected people are forced to stay home. These are emerging diseases that increasingly affect more population, and also younger.

By improving prevention and avoiding the use of toxic and polluting agents and exposure to harmful electromagnetic fields, we will benefit the health of affected people and of all citizens.

ACAF was the first association in Catalonia constituted with people affected by these diseases, working together with the Plataforma FAMILIARS FM-SFC-SQM.

Llaç Dia Mundial Fibromiàlgia i SFC/EM

For several years, on the FM and CFS/ME Awareness Day, orange ribbons were distributed as a color linked to the demand for equal opportunities for people with disabilities; since, internationally, it's been established the ribbon went dark blue or purple as a symbol of these syndromes, without having finished defining a color that embraces all. Generally, we might find more purple or purple ribbon tie to FM, and blue (in various shades) more linked to CFS/ME. Regarding MCS, yellow, green or a combination of yellow and green ribbons have been used.

In 2005, in order to keep the meaning of the first ribbon that we used while we were adopting the blue colors that were used in other countries, the image of a blue ribbon on an orange background was designed to represent both.

In the commemorative acts of the FM and CFS/ME (and also of MCS and EHS) Awareness Day, as well as in other events of dissemination and social awareness, these ribbons are distributed between citizens, in order to give more visibility to these syndromes and in order to ask for a gesture of solidarity and support for the people affected.

Currently, ACAF has more than 4,500 members and 40 points of care in 21 counties of Catalonia where it develops an extensive programme of face-to-face activities. For those affected people who live far from the places where these activities are carried out, and for those who do not have the time, or who have difficulties to travel (functional limitation, high sensitivity to environmental factors, dependents, etc.), the association has developed the most complete programme of activities in Catalonia. ), the association has developed the most complete programme of specific online activities for people affected by these diseases, with weekly sessions of psychological and emotional support, functional recovery workshops (tai-chi, body integration, adapted pilates, etc.), cognitive stimulation workshops, therapeutic workshops of artistic expression (art therapy, music therapy, etc.), conferences, talks and seminars. The programme includes activities from Monday to Saturday, in the mornings and afternoons, and through different platforms to facilitate participation. In addition, members regularly receive information of interest to the group: the SSC magazine Biorritmes, publications, articles, audio and video clips about the diseases, etc.

Since its foundation in 1999, ACAF has been working to improve the quality of life of those affected:

- offering attention, information and guidance in person, by telephone, email and social networks

- adapting its activity to bring it closer to people with these illnesses

- with companies and professionals, to achieve economic and logistical advantages for those affected

- transferring relevant and interesting information for the collective of people affected by central sensitizacion syndromes

- with the different departments of the Generalitat de Catalunya to improve care for people affected (social and health care, available resources, etc.), and with all related agents (scientific societies, professional associations, etc.)

- in the dissemination of knowledge about the diseases and in raising public awareness about people living with the diseases

On a day like today we again appeal to the empathy of people, civil society and administrations to adhere to this day, to better understand the complexity of what lives and suffers more than 3% of the population in Catalonia, in order to advance in the knowledge, prevention and sanitary and social approach to these diseases.

Although every day we count with more support from the administration and many health professionals, we still have a lot of work to do so that people affected by Central Sensitization Syndromes have the medical care, social recognition and support that they need, so that they can achieve the best possible quality of life. Surely, joining efforts, we can continue to advance on this path of normalization and recognition.

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COMMUNICATION AND AWARENESS EVENTS:

This year we are planning a new edition of the social awareness campaign, #CatalunyadeBlau, which we hope to be able to complement with the support of some face-to-face information points. The work of information, dissemination, social awareness and visibility that we carry out does not stop; you can see some of the dissemination events that we are organising in the section events and conferences scheduled on our website:

Conferences and events

 

AWARENESS CAMPAIGNS

 

#CatalunyadeBlau 2024

CatalunyadeBlau 2024

On the occasion of the commemoration of the World Day for Fibromyalgia and Chronic Fatigue Syndrome/ME, and other central sensitisation syndromes (MCS-EHS), once again this year, in conjunction with the Plataforma de Familiares FM-SFC-SQM, we promote the awareness and social awareness campaign #CatalunyadeBlau, so that many places in the country, as well as in other areas of Catalan culture, are lit up in dark blue to give visibility to the diseases and in solidarity with the people affected.

This year, even though it coincides with the elections to the Parliament of Catalonia, we hope to count on the solidarity and support of the territory. The following municipalities and institutions have already confirmed their participation in 2024 (the list will be updated as we receive confirmations):

  1. Abrera: Casa de la Vila
  2. Albesa: Casa de la Vila
  3. Alcanó: Campanar església parroquial de Sant Pere
  4. Amposta: Mercat Municipal
  5. Andorra La Vella: Fonts de la rotonda
  6. Arenys de Mar: Casa de la Vila
  7. Argentona: Campanar de l'església de Sant Julià
  8. Artesa de Segre: Casa de la Vila
  9. Ascó: Edificis municipals
  10. Badalona: edifici Capitania del Port de Badalona
  11. Balaguer: indrets emblemàtics del municipi
  12. Banyeres del Penedès: Casa de la Vila
  13. Banyoles: Casa de la Vila
  14. Barberà del Vallès: Casa de la Vila
  15. Barcelona: Casa de la Ciutat
  16. Barcelona: Centre Comercial Les Arenes
  17. Barcelona: Edifici Can Serra (Diputació de Barcelona)
  18. Barcelona: Edifici Històric Universitat de Barcelona
  19. Barcelona: Fonts de la Ciutat
  20. Barcelona: Gran Teatre del Liceu
  21. Barcelona: Museu Marítim i Muralles de les Drassanes
  22. Barcelona: Palau Robert
  23. Barcelona: Teatre Nacional de Catalunya
  24. Barcelona: Torre Glòries
  25. Begues: Casa de la Vila
  26. Begur: Castell de Begur
  27. Bellcaire d'Urgell: Casa de la Vila
  28. Bellpuig d'Urgell: Casa de la Vila
  29. Bellver de Cerdanya: Muralles de Bellver
  30. Besalú: Casa de la Vila
  31. Berga: Casa de la Vila
  32. Cabrera de Mar: Rotonda del Sindicat
  33. Cadaqués: Societat l'Amistat Cadaqués
  34. Canyelles: Casa de la Vila
  35. Calafell: Castell de Calafell
  36. Caldes d'Estrac: Casa de la Vila
  37. Caldes de Malavella: Rotonda del municipi
  38. Calella: Casa de la Vila
  39. Calonge i Sant Antoni: indrets emblemàtics del municipi
  40. Canet de Mar: Biblioteca Pere Gual, La Masoveria i altres edificis municipals
  41. Canovelles: Centre cultural, Teatre-Auditori i font de la Plaça Núria Miralles
  42. Canyelles: Casa de la Vila
  43. Capellades: Coves del Capelló
  44. Cardedeu: Casa de la Vila
  45. Castell d'Aro, Platja d'Aro i S'Agaró: Casa de la Vila
  46. Castellbisbal: Casa de la Vila
  47. Castelldefels: Plaça de les Palmeres
  48. Cervelló: Casa de la Vila
  49. Cervera: Campanar de l’església de Santa Maria de Cervera
  50. Ciutadella de Menorca: Antic Palau del Governador (actual Casa de la Vila)
  51. Collbató: Església de Sant Corneli
  52. Cornellà de Llobregat: Casa Consistorial i Torre de la Miranda
  53. Creixell: Casa de la Vila
  54. Cubelles: Castell de Cubelles i Església de Santa Maria
  55. Cunit: Casa de la Vila
  56. Deltebre: Pont Lo Passador
  57. El Montmell: Casa de la Vila
  58. El Vendrell: Campanar de l'Església del Vendrell
  59. Esparreguera: Casa de la Vila
  60. Falset: Casa de la Vila
  61. Figueres: Teatre Municipal El Jardí i Casa de la Vila
  62. Gandesa: Casa de la Vila
  63. Gavà: Ésser del Mil·lenni
  64. Gelida: Església Parroquial de Sant Pere
  65. Gualta: Casa de la Vila
  66. Guissona: Casa de la Vila
  67. Hospitalet de Llobregat: Casa de la Vila
  68. Igualada: Casa de la Vila
  69. L'Aldea: Casa de la Vila
  70. L'Ametlla del Vallès: Casa de la Vila
  71. La Bisbal d'Empordà: Torre Maria
  72. La Bisbal del Penedès: Casa Consistorial
  73. La Garriga: Casa Consistorial
  74. La Palma de Cervelló: Casa de la Vila
  75. La Pobla de Lillet: Casa de la Vila
  76. La Ràpita: Casa de la Vila
  77. La Roca del Vallès: Casa de la Vila
  78. La Seu d'Urgell: Casa de la Vila
  79. Les Borges Blanques: Palau del Marquès d'Olivart (actual Casa de la Vila)
  80. Linyola: Campanar de Santa Maria
  81. Llançà: Casa de la Vila
  82. Lleida: Paeria de Lleida
  83. Malgrat de Mar: Lletres gegants del municipi
  84. Manlleu: Pont de Manlleu
  85. Manresa: Casa de la Vila
  86. Martorell: Pont d'Anoia
  87. Martorelles: Lledoner de Can Puig
  88. Masquefa: Casa de la Vila
  89. Matadepera: Casa de la Vila
  90. Mataró: Casa de la Vila
  91. Mollerussa: Casa de la Vila
  92. Mollet del Vallès: Museu Abelló
  93. Mont-Roig del Camp: Casa de Cultura i rotonda d'entrada
  94. Montblanc: Muralla de Montblanc
  95. Montgat: Casa de la Vila
  96. Montmeló: Casa de la Vila
  97. Montornés del Vallès: Edificis emblemàtics del municipi
  98. Mora d'Ebret: Casa Consistorial
  99. Navarcles: Casa de la Vila
  100. Òdena: Casa de la Vila i rotonda Pla d'Òdena
  101. Olesa de Montserrat: Torre del Rellotge
  102. Olot: Plaça Clarà
  103. Palamós: Casa de la Vila i indrets institucionals del municipi
  104. Palau d'Anglesola: Campanar de l'església de Sant Joan Baptista i Casa de Vila
  105. Palau-Solità i Plegamans: Edificis municipals
  106. Palma de Mallorca: Castell de Bellver
  107. Pals: Vaixell de la rotonda sud
  108. Parets del Vallès: Casa de la Vila
  109. Piera: Casa de la Vila
  110. Pineda de Mar: Casa de la Vila
  111. Polinyà: Porxada de la Plaça de la Vila i reproducció de la bomba de l'Avinguda de Sentmenat
  112. Port de la Selva: Església de la Nostra Senyora de les Neus
  113. Premià de Dalt: Casa Consistorial i xemeneia de la fàbrica
  114. Premià de Mar: Casa de la Vila
  115. Puigcerdà: Casa de la Vila i Campanar de Santa Maria
  116. Reus: Gaudí Centre
  117. Rialp: Casa de la Vila
  118. Riera de Gaià: Casa de la Vila
  119. Ripoll: Casa de la Vila
  120. Riudellots: Casa de la Vila
  121. Riudoms: Casa de la Vila
  122. Roda de Berà: Casa de la Vila
  123. Roses: Casa de la Vila
  124. Rosselló: Casa de la Vila
  125. Rubí: Casa Consistorial
  126. Sallent: Casa de la Vila
  127. Salou: Casa Consistorial
  128. Sant Adrià de Besòs: Casa de la Vila
  129. Sant Bartomeu del Grau: Casa de la Vila
  130. Sant Cebrià de Vallalta: Església de Sant Cebrià
  131. Sant Cugat del Vallès: Casa de la Vila
  132. Sant Feliu de Guíxols: Arc de Sant Benet
  133. Sant Feliu de Pallerols: Casa de la Vila
  134. Sant Hilari Sacalm: Font de la Plaça Gravalosa
  135. Sant Jaume d'Enveja: Pont Lo Passador
  136. Sant Llorenç d'Hortons: Casa de la Vila
  137. Sant Pere de Ribes: Casa de la Vila i edifici institucional de la Vinya d'en Petaca
  138. Sant Pere de Riudebitlles: Casa de la Vila
  139. Sant Pol de Mar: Casa de la Vila
  140. Sant Sadurní d'Anoia: Casa de la Vila
  141. Sant Vicenç de Montalt: Rotondes Nacional II i sortida autopista
  142. Sant Vicenç de Taüll: Església de Sant Climent de Taüll
  143. Santa Bàrbara: Rotonda de les Tradicions Planeres
  144. Santa Margarida i el Monjos: Casa de la Vila
  145. Santa Margarida de Palautordera: Casa de la Vila
  146. Santa Oliva : Casa Consistorial
  147. Santpedor: Capella de Sant Andreu
  148. Sarral: Casa de la Vila
  149. Sarrià de Ter: Casa de la Vila
  150. Sitges: Església de Sant Sebastià
  151. Solsona: Casa de la Ciutat
  152. Soses: Casa de la Vila
  153. Suria: Casa de la Vila
  154. Taradell: Centre Cultural Can Costa
  155. Tarragona: Palau Municipal, Torre dels Vents i Edifici Jove Kesse
  156. Tarragona: Palau de la Diputació de Tarragona
  157. Terrassa: Casa de la Vila i Monument a la Dona Treballadora
  158. Torredembarra: Casa de la Vila
  159. Torrefarrera: Casa de la Vila
  160. Torrelavit: Casa de la Vila
  161. Torrelles de Foix: Espais municipals
  162. Tortosa: Casa de la Vila
  163. Ullà: Casa de la Vila
  164. Vallgorguina: Casa de la Vila
  165. Vallirana: Casa de la Vila
  166. Vielha e Mijaran : Casa de la Vila
  167. Vila-rodona: Columbari Romà i llum entrada poble
  168. Vila-sacra: Església de Sant Esteve
  169. Vila-seca: Casa de la Vila
  170. Vilanova del Camí: Casa de la Vila
  171. Vilanova i la Geltrú: Casa de la Vila
  172. Vilaplana: Casa de la Vila
  173. Vilassar de Mar: Casa de la Vila
  174. Vinyols i Els Arcs: Rotonda entrada del poble


Some municipalities and institutions that for various reasons do not have lighting equipment will join the campaign with other actions and by publicising it on their social networks:

· Bolvir
· Borredà
· Calldetenes
· Campdevànol
· Castellgalí
· Celrà
· Consorci de la Colònia Güell
· Diputació de Girona
· Eivissa
· Fogars de la Selva
· Girona
· Granollers
· Moià
· Palafrugell
· Palau de la Música Catalana
· Pallejà

· Rajadell
· Sabadell
· Sant Celoni
· Sant Miquel de Balenyà

· Santa Coloma de Cervelló
· Santa Coloma de Gramenet
· Sentmenat

· Tàrrega
· Teià
· Tordera
· Torroella de Montgrí
· Tremp
· Viladrau
· Vilafranca del Penedès
· Vilallonga del Camp

 

Likewise, on the occasion of World Disease Day and at the request of the FAMILIARS FM-SFC-SQM Platform and ACAF, the following will also be illuminated in dark blue:

· Congress of Deputies
· Senate Palace

 

If you are from a municipality, organism or institution interested in collaborating in this campaign, please contact us by email at catalunyadeblau@fibromialgia.cat to give visibility to your gesture of solidarity.

If you have joined the campaign, or if you want to collaborate by giving it VISIBILITY, we would be grateful if you could spread the word on your websites and/or social networks:

- Using some of the hashtags that we will use for communications in the networks:
#CatalunyadeBlau #DiaMundialFibromialgiaSFCem #DiaMundialFibromialgia #DiaMundialSFCem #DiaMundialFibromialgiaiSFCem  #WorldMEDay  #GlobalVoiceForME  #LearnFromME  #VISIBILITY  #12M

- tagging or quoting the promoting associations, in order to spread it on websites and social networks, as well as to the people associated with our organisations:

 

  ACAF SSC        Plataforma FAMILIARS FM-SFC-SQM
Web

fibromialgia.cat

  Web

plataformafamiliars.org

Facebook

facebook.com/ACAF.ssc

  Facebook

fb.com/familiars.fmsfcsqm

Twitter

twitter.com/ACAFssc

  Twitter

twitter.com/familiarsfmsfc

Instagram

instagram.com/acaf.ssc

  Instagram

instagram.com/familiars.fmsfc

YouTube

linkedin.com/in/acafssc

     
YouTube

youtube.com/@ACAFssc

   

 

 

Thanks for your collaboration!  

 

 

#WorldMEDay

WorldMEDay

Both the Plataforma Familiars FM-SFC-SQM and the ACAF are founding entities of the World Alliance for ME, a unique alliance of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis organizations from around the world. Member associations and foundations are national entities representing affected people, working together to bring about change for people with CFS/ME at the national and international level.

The World Alliance for ME is a global communication space for organizations to share knowledge, experience and challenges faced in their countries. Keeping in mind that the approach to CFS/ME treatment and research varies widely around the world, the Alliance prioritizes the space to foster communication and mutual learning.

On 12 May 2024, in commemoration of World CFS/ME Day, the organization will launch the global campaign #GlobalVoiceForME, with the aim of sharing the experience of those affected, of what can be learned from such a disabling and under-recognised illness as CFS/ME.

As part of the campaign, affected people are asked to design their own poster, explaining what they have learned from living with the disease that could help other affected people and/or those around them, as well as people who work or live with an affected person, and then post these posters on social networks and share their experience. The poster is customisable with text, image, etc.

WorldMEDay #LearnFromME

 

To see all the actions you can take to contribute to the current campaign
follow the link:

https://worldmealliance.org/worldmeday/

_________________________________________________________________________________________

 

 

AWARENESS CAMPAIGNS - PREVIOUS EDITIONS

#CatalunyadeBlau 2023

CatalunyadeBlau 2023

On the occasion of the commemoration of the World Day of the diseases, once again, together with the Plataforma de Familiares FM-SFC-SQM, we promoted the awareness and social awareness campaign #CatalunyadeBlau, so that many places in the country, as in some territories of Catalan culture, illuminate in blue in order to give visibility to the diseases and in solidarity with the people affected.

In 2023, more than 150 adhesions were received from the 41 counties of Catalonia and Aran, as well as from the Balearic Islands and Andorra. In addition, the Congress of Deputies, the Senate Palace and Malaga City Hall were lit up in blue:

  1. Abrera: Casa de la Vila
  2. Amposta: Mercat Municipal
  3. Andorra La Vella: Campanar de l’església de Sant Esteve
  4. Arbúcies: Can Delfí (actual Casa de la Vila)
  5. Arenys de Mar: Casa de la Vila
  6. Argentona: Campanar de l'església de Sant Julià
  7. Badalona: edifici Capitania del Port de Badalona
  8. Balaguer: Paeria de Balaguer
  9. Banyeres del Penedès: Casa Consistorial
  10. Banyoles: Casa de la Vila
  11. Barberà del Vallès: Casa de la Vila
  12. Barcelona: Casa de la Ciutat
  13. Barcelona: Centre Comercial Diagonal Mar
  14. Barcelona: Centre Comercial Les Arenes
  15. Barcelona: Gran Teatre del Liceu
  16. Barcelona: Museu Marítim i Muralles de les Drassanes
  17. Barcelona: Palau de la Generalitat
  18. Barcelona: Palau Robert
  19. Barcelona: Teatre Nacional de Catalunya
  20. Barcelona: Torre de Collserola
  21. Barcelona: Torre Glòries
  22. Barcelona: Universitat de Barcelona (Edifici Històric)
  23. Bellcaire d'Urgell: Casa de la Vila
  24. Bellver de Cerdanya: Muralla
  25. Bellpuig d'Urgell: Edifici municipal
  26. Besalú: Casa de la Vila
  27. Begues: Casa Consistorial
  28. Begur: Castell de Begur i l'Església de Sant Esteve d'Esclanyà
  29. Berga: Casa de la Vila
  30. Blanes: Casa Consistorial
  31. Bolvir: Casa Consistorial
  32. Cabra del Camp: Casa de la Vila
  33. Cabrils: Casa de la Vila
  34. Calafell: Castell de Calafell
  35. Caldes d'Estrac: Casa de la Vila
  36. Caldes de Malavella: Estàtua de la rotonda d'entrada al municipi
  37. Calella: Casa de la Vila
  38. Cambrils: Fanals blaus a la Platja del Regueral
  39. Calonge i Sant Antoni: Indrets emblemàtics del municipi
  40. Canet de Mar: Biblioteca Pere Gual, La Masoveria i altres edificis municipals
  41. Canovelles: Centre Cultural, Teatre-Auditori i font de la Plaça Núria Miralles
  42. Castell-Platja d'Aro: Casa de la Vila
  43. Castellar del Vallès: Rotonda de Castellar
  44. Castelldefels: Casa de la Vila i font de l’Avinguda de La Pineda
  45. Celrà: Teatre Municipal
  46. Cervera: Campanar de l’església de Santa Maria de Cervera
  47. Cistella: Casa de la Vila
  48. Ciutadella de Menorca: Antic Palau del Governador (actual Casa de la Vila)
  49. Cornellà de Llobregat: Casa Consistorial i Torre de la Miranda
  50. Creixell: Casa de la Vila
  51. Cubelles: Castell de Cubelles
  52. Cunit: Casa de la Vila
  53. Deltebre: Pont Lo Passador
  54. Eivissa: Passeig de Vara de Rey
  55. El Vendrell: Campanar de l'església del Vendrell
  56. Falset: Casa de la Vila
  57. Figueres: Teatre Municipal El Jardí
  58. Gandesa: Casa de la Vila
  59. Gavà: Ésser del Mil·lenni
  60. Gelida: Campanar de l'església
  61. Gualta: Casa de la Vila
  62. Guissona: Casa de la Vila
  63. Hospitalet de Llobregat: Casa de la Vila
  64. Igualada: Casa de la Vila
  65. Juncosa de Montmell: Casa Consistorial
  66. L'Aldea: Casa de la Vila
  67. L'Ametlla del Vallès: Casa Consistorial
  68. L'Arboç: Casa Consistorial
  69. La Bisbal del Penedès: Casa Consistorial
  70. La Garriga: Casa Consistorial
  71. La Pobla de Lillet: Casa de la Vila
  72. La Ràpita: Església Nova
  73. La Seu d'Urgell: Casa de la Vila
  74. Les Borges Blanques: Palau del Marquès d'Olivart (actual Casa de la Vila)
  75. Lleida: Ponts i Paeria de Lleida
  76. Lloret de Mar: Casa Consistorial
  77. Malgrat de Mar: Lletres gegants del municipi
  78. Manresa: Casa de la Vila
  79. Martorell: Pont Anoia
  80. Matadepera: Casa de la Vila
  81. Mataró: Casa de la Vila
  82. Mollet del Vallès: Museu Abelló
  83. Mont-roig del Camp: Casa de Cultura i rotonda entrada Miami Platja
  84. Montblanc: Muralla de Montblanc
  85. Montgat: Casa de la Vila
  86. Mora d'Ebre: Casa Consistorial
  87. Navarcles: Casa de la Vila
  88. Olesa de Bonesvalls: Casa de la Vila
  89. Olesa de Montserrat: Torre del Rellotge
  90. Olot: Plaça Clarà
  91. Palafrugell: Casa de la Vila
  92. Palamós: Casa de la Vila i indrets institucionals del municipi
  93. Palau d’Anglesola: Campanar de l’església de Sant Joan Baptista i Casa de la Vila
  94. Palau-solità i Plegamans: Casa de la Vila
  95. Palma de Mallorca: Caixa Fòrum
  96. Palma de Mallorca: Cort
  97. Pals: Vaixell de la rotonda sud
  98. Parets del Vallès: Casa de la Vila
  99. Piera: Entrades del municipi
  100. Pineda: Lletres del municipi al Passeig de Mar
  101. Polinyà: Porxada de la Plaça de la Vila i reproducció de la bomba de l'Avinguda de Sentmenat
  102. Port de la Selva: Església de la Nostra Senyora de les Neus
  103. Premià de Dalt: Casa Consistorial i xemeneia de la fàbrica
  104. Puigcerdà: Casa de la Vila i Campanar de Santa Maria
  105. Reus: Gaudí Centre i fonts de la ciutat
  106. Ripoll: Casa de la Vila
  107. Riudoms: Casa de la Vila
  108. Roda de Berà: Casa de la Vila
  109. Roses: Casa Consistorial
  110. Rubí: Casa Consistorial
  111. Sabadell: Casa de la Vila
  112. Sallent: Casa de la Vila
  113. Salou: Casa Consistorial
  114. Sant Adrià de Besòs: Casa de la Vila
  115. Sant Bartomeu del Grau: Casa de la Vila
  116. Sant Cebrià de Vallalta: Església de Sant Cebrià
  117. Sant Cugat del Vallès: Casa de la Vila
  118. Sant Hilari Sacalm: Espai municipal
  119. Sant Llorenç d'Hortons: Casa Consistorial
  120. Sant Martí Sarroca: Casa Consistorial
  121. Sant Pere de Ribes: Casa de la Vila i edifici institucional de la Vinya d’en Petaca
  122. Sant Pere de Riudebitlles: Casa de la Vila
  123. Sant Sadurní d'Anoia: Casa de la Vila
  124. Sant Vicenç de Montalt: Rotondes del Pont de la Xata i Can Muntaner
  125. Sant Vicenç de Taüll: Església de Sant Climent de Taüll
  126. Santa Coloma de Gramenet: Casa de la Vila
  127. Santa Margarida i els Monjos: Biblioteca Municipal
  128. Santa Maria de Palautordera: Casa de la Vila
  129. Santa Oliva: Casa Consistorial
  130. Santpedor: Capella de Sant Andreu
  131. Sarral: Casa de la Vila
  132. Sarrià de Ter: Casa de la Vila
  133. Sentmenat: Casa de la Vila
  134. Sitges: Església de Sant Sebastià
  135. Solsona: Casa de la Ciutat
  136. Sort: Església de Sort
  137. Súria: Casa de la Vila
  138. Taradell: Dipòsit de Can Costa
  139. Tarragona: Palau Municipal, Torre dels Vents i Edifici Jove Kesse
  140. Tàrrega: Font del Pati
  141. Terrassa: Casa de la Vila
  142. Tordera: Fonts de la Plaça de la Concòrdia
  143. Tortosa: Pont de Tortosa
  144. Torrelles de Foix: indrets del municipi
  145. Tossa de Mar: Museu Municipal de Tossa (MMdT)
  146. Tremp: Casa Consistorial i dues rotondes del municipi
  147. Vallirana: Casa de la Vila
  148. Vielha e Mijaran: Campanar de l'església de Sant Miquel
  149. Vic: Casa de la Vila
  150. Vila-seca: Casa Consistorial
  151. Viladrau: Casa de la Vila engalanada de blau
  152. Vilanova del Camí: Casa de la Vila
  153. Vilanova i la Geltrú: Casa de la Vila
  154. Vilaplana: Casa de la Vila
  155. Vilassar de Mar: Casa de la Vila


Some city councils and institutions that for various reasons did not have lighting equipment, joined the campaign with other actions and by publicising it on their social networks:

· La Bisbal d'Empordà
· Borredà
· Cadaqués
· Canyelles
· Consorci de la Colònia Güell
· Diputació de Barcelona
· Diputació de Girona
· Diputació de Tarragona
· Esparreguera
· Girona
· Manlleu

· Martorelles
· Moià

· Palau de la Música Catalana
· Pallejà
· Sant Celoni
· Sant Feliu de Guíxols
· Sant Miquel de Balenyà
· Sant Pol de Mar
· Santa Coloma de Cervelló
· Torelló

Some places and institutions in Spain, in response to our call, also wanted to give visibility to their solidarity with our collective and lighted up in blue on May 12th:

· Congreso de los Diputados (Madrid)
· Málaga: Ayuntamiento
· Palacio del Senado (Madrid)

#WorldMEDay 2023

WorldMEDay

Both the Plataforma Familiars FM-SFC-SQM and the ACAF are founding entities of the World Alliance for ME, a unique alliance of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis organizations from around the world. Member associations and foundations are national entities representing affected people, working together to bring about change for people with CFS/ME at the national and international level.

The World Alliance for ME is a global communication space for organizations to share knowledge, experience and challenges faced in their countries. Keeping in mind that the approach to CFS/ME treatment and research varies widely around the world, the Alliance prioritizes the space to foster communication and mutual learning.

On 12 May, in commemoration of World CFS/ME Day, the global campaign #LearnFromME was launched, with the aim of sharing the experience of those affected, of what can be learned from such a disabling and under-recognised illness as CFS/ME.

As part of the campaign, affected people were asked to design their own poster, explaining what they have learned from living with the disease that could help other affected people and/or those around them, as well as people who work or live with an affected person, and then post these posters on social networks and share their experience. The posters were customisable, and templates were prepared in different languages.

WorldMEDay #LearnFromME

 

To see all the actions you can take to contribute to the current campaign
follow the link:

https://worldmealliance.org/worldmeday/

_________________________________________________________________________________________

 

 

#CatalunyadeBlau 2022

CatalunyadeBlau 2022

On the occasion of the commemoration of the World Day of the Diseases, once again, together with the Plataforma de Familiares FM-SFC-SQM, we promoted the awareness and social awareness campaign #CatalunyadeBlau, so that many places in the country, as in some territories of Catalan culture, were illuminated in blue in order to give visibility to the diseases and in solidarity with the people affected. In some municipalities where there was no lighting, they also showed their solidarity with various actions (banners, dissemination on social networks...).

In 2022 we had more than 100 supports of the 41 counties of Catalonia and Aran, as well as Andorra, Palma de Mallorca, Ciutadella de Menorca and Ibiza. In addition, the Congress of Deputies and the Senate in Madrid were also lit up in blue. In Catalonia, the following municipalities and institutions participated, lighting up buildings and emblematic places:

· Amposta: Mercat Municipal
· Andorra la Vella: Església de Sant Esteve

· Arbúcies: Edifici de Can Delfí
· Arenys de Mar: Casa de la Vila
· Balaguer: Paeria de Balaguer
· Banyoles: Casa de la Vila
· Barcelona: Basílica de la Sagrada Família
· Barcelona: Casa de la Ciutat
· Barcelona: Centre Comercial Les Arenes
· Barcelona: Diputació de Barcelona (Edifici Can Serra)
· Barcelona: Fonts de la ciutat
· Barcelona: Gran Teatre del Liceu
· Barcelona: Museu Marítim i Muralles de les Drassanes
· Barcelona: Palau de la Generalitat
· Barcelona: Palau Robert
· Barcelona: Teatre Nacional de Catalunya
· Barcelona: Temple del Sagrat Cor del Tibidabo
· Barcelona: Torre Glòries
· Begues: Casa Consistorial
· Begur: Castell de Begur i esglèsia de Sant Esteve d'Esclanyà
· Bellcaire d'Urgell: Casa de la Vila
· Bellpuig: Casa de la Vila
· Berga: Casa de la Vila
· Besalú: Casa de la Vila
· Blanes: Casa Consistorial
· Cabra del Camp: Plaça de l'Ajuntament
· Calafell: Castell de Calafell
· Caldes de Malavella: Font
· Canet de Mar: Casa de la Vila, Biblioteca Pere Gual i Pujadas, La Masoveria (CC Vil·la Florida)
· Canovelles: Centre Cultural, Edifici del Teatre-Auditori i la Font de la Plaça Núria Miralles
· Castellar del Vallès: Rotonda de Castellar
· Castelldefels: Casa de la Vila i font de l’Avinguda de La Pineda
· Cervera: Campanar de l’església de Santa Maria de Cervera
· Cistella: Església de Santa Maria de Cistella
· Ciutadella de Menorca: Ajuntament - antic Palau del Governador
· Cornellà de Llobregat: Torre de la Miranda
· Cubelles: Església i Castell de Cubelles
· Cunit: Casa de la Vila
· Deltebre: Pont "Lo Passador"
· Eivissa: Passeig de Vara de Rey
· El Vendrell: Campanar de l'església del Vendrell
· Esparreguera: Casa de la Vila
· Falset: Casa de la Vila
· Figueres: Teatre Municipal El Jardí
· Gandesa: Casa de la Vila
· Gavà: Ésser del Mil·leni
· Gelida: Casa Consistorial
· Girona: Palau de la Diputació de Girona
· Gualta: Casa Consistorial
· Guissona: Casa de la Vila
· Hospitalet de Llobregat: Casa de la Vila
· Igualada: Casa de la Vila
· L'Ametlla del Vallès: Casa Consistorial
· La Bisbal del Penedès: Casa Consistorial
· La Garriga: Casa Consistorial
· La Seu d'Urgell: Casa de la Vila
· Les Borges Blanques: Palau dels Marquesos d'Olivart
· Lleida: Ponts i Paeria de Lleida
· Lloret de Mar: Casa Consistorial
· Manresa: Casa de la Vila
· Martorell: Pont d'Anoia
· Matadepera: Indrets emblemàtics del municipi
· Mataró: Casa de la Vila
· Mollerussa: Casa de la Vila
· Montblanc: Muralles de Montblanc
· Mora d'Ebre: Casa Consistorial
· Olesa de Montserrat: Torre del Rellotge
· Palafrugell: Casa de la Vila
· Palamós: Casa de la Vila i indrets institucionals del municipi
· Palma de Mallorca: Cort
· Pals: Rotonda del Vaixell
· Piera: Rotondes del municipi
· Pobla de Lillet: Casa de la Vila
· Polinyà: Porxada de la Plaça de la Vila i reproducció de la bomba de l'Avinguda de Sentmenat
· Premià de Dalt: Xemeneia de la Fàbrica
· Puigcerdà: Casa de la Vila
· Reus: Font de la Plaça del Nen de les Oques i Gaudí Centre
· Roses: Casa Consistorial
· Ripoll: Casa de la Vila
· Sabadell: Fonts de la ciutat
· Salou: Casa Consistorial
· Sant Adrià de Besòs: Casa Consistorial
· Sant Cugat del Vallès: Casa de la Vila
· Sant Feliu de Guíxols: Arc de Sant Benet
· Sant Hilari Sacalm: Casa de la Vila
· Sant Llorenç d'Hortons: Casa Consistorial
· Sant Pere de Ribes: Castell de Ribes
· Santa Coloma de Gramenet: Fonts de la ciutat
· Santa Margarida i Els Monjos: Biblioteca Municipal
· Santpedor: Capella de Sant Andreu
· Sentmenat: Casa de la Vila
· Sitges: Ermita de Sant Sebastià
· Solsona: Casa de la Ciutat
· Sort: Espai emblemàtic municipal
· Tarragona: Palau Municipal i Torre dels Vents
· Tarragona: Palau de la Diputació de Tarragona
· Tàrrega: Font del Pati
· Terrassa: Casa de la Vila i Monument a la Dona
· Tordera: Fonts de la Plaça de la Concòrdia
· Tremp: Casa Consistorial
· Vall de Boí: Església de Sant Climent de Taüll
· Vic: Casa de la Vila
· Vielha e Mijaran: Campanar de l'església de Sant Miquel
· Vila-seca: Casa Consistorial
· Viladecans: Casa de la Vila


Some municipalities and institutions that for various reasons did not have lighting equipment joined the campaign with other actions and by publicising it on their social networks:

· Bellver de Cerdanya
· Cadaqués
· Canyelles
· Capellades
· Girona
· Manlleu
· Martorelles
· Moià
· Palau de la Música Catalana
· Roses
· Sant Pol de Mar
· Tossa de Mar
· Viladrau
· Vilanova i la Geltrú


 

 

#WorldMEDay 2022

 

WorldMEDay

Both the Plataforma Familiars FM-SFC-SQM and the ACAF are founding entities of the World Alliance for ME, a unique alliance of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis organizations from around the world. Member associations and foundations are national entities representing affected people, working together to bring about change for people with CFS/ME at the national and international level.

The World Alliance for ME is a global communication space for organizations to share knowledge, experience and challenges faced in their countries. Keeping in mind that the approach to CFS/ME treatment and research varies widely around the world, the Alliance prioritizes the space to foster communication and mutual learning.

On May 12, on the occasion of the commemoration of the World Day of the disease, the global campaign #LearnFromME has been launched, with the aim of sharing the experience of affected people, of what is learned with such a disabling and under-recognized disease as CFS/ME.

WorldMEDay

 

______________________________________________________________________________________

 

 

 

#CatalunyadeBlau 2021

#CatalunyadeBlau

On the occasion of the commemoration of World Awareness Day, together with the FM-CFS-MCS Relatives Platform, we promoted the social awareness campaign #CatalunyadeBlau to illuminate many places in blue in order to give visibility to the diseases and in solidarity with the people affected. In some municipalities that did not have lighting, also showed their solidarity with various actions (ties, banners, social networks ...).

In 2021, among others, the following municipalities and institutions joined the campaign:

Amposta, Artés, Balaguer, Banyeres del Penedès, Banyoles, Barcelona, Bellpuig, Berga, Besalú, Calaf, Calafell, Callús, Capellades, Cardona, Cassà de la Selva, Castellar del Vallès, Celrà, Cervera, Cornellà de Llobregat, Cubelles, Deltebre, El Pont de Suert, El Vendrell, Falset, Figueres, Girona, Hospitalet de Llobregat, Igualada, L'Ametlla del Vallès, L'Arboç, La Bisbal d’Empordà, La Bisbal del Penedès, La Roca del Vallès, La Vall de Boí, La Seu d'Urgell, Les Borges Blanques, Linyola, Lleida, Malgrat de Mar, Manlleu, Manresa, Masquefa, Mataró, Moià, Molins de Rei, Mollerussa, Montblanc, Montmell, Móra d'Ebre, Navarcles, Navàs, Òdena, Olèrdola, Olesa de Montserrat, Olot, Palafrugell, Palamós, Palau-solità i Plegamans, Piera, Puigcerdà, Reus, Ripoll, Roda de Berà, Sabadell, Sallent, Sant Adrià de Besòs, Sant Cugat del Vallès, Sant Feliu de Guíxols, Sant Feliu de Llobregat, Sant Fruitós de Bages, Sant Joan de Vilatorrada, Sant Llorenç d'Hortons, Sant Martí Sarroca, Sant Miquel de Balenyà, Sant Pere de Riudebitlles, Sant Sadurní d’Anoia, Santa Bàrbara, Santa Coloma de Farners, Santa Margarida i els Monjos, Santa Oliva, Santpedor, Sarral, Sitges, Solsona, Sort, Súria, Tarragona, Tàrrega, Terrassa, Torrelavit, Torroella de Montgrí, Tortosa, Tremp, Valls, Vic, Vielha e Mijaran, Vilanova del Camí, Vilanova i la Geltrú

Gran Teatre del Liceu, Teatre Nacional de Catalunya, Il·lustre Col·legi de l'Advocacia de Barcelona, Diputació de Girona, Diputació de Tarragona
Palau de la Generalitat i Palau Robert - Generalitat de Catalunya

Also adhered Centre Comercial Arenas de Barcelona

 

#CatalunyadeBlau
#DiaMundialFibromialgia #DiaMundialFMySFC #DiaMundialSSC
#Fibromialgia #SFCem #SQM #EHS #SSC #ACAF

 

#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau
#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau
#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau
#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau
#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau
#CatalunyadeBlau
#CatalunyadeBlau #CatalunyadeBlau

 

______________________________________

 

ACAF is a member of:

Consell Consultiu de Pacients de Catalunya Barcelona's Table for CSS COCEMFE Barcelona SEFIFAC World ME Alliance

 

 

 
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