International Fibromyalgia and ME/CFS
and other CSS (MCS-EHS) Awareness Day


    

FM & CFS Awareness Day

 

On May 12 officially marks the International Fibromyalgia and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day, although other Central Sensitization Syndromes have been included, such as Multiple Chemical Sensitivity and Electro-Hypersensitivity.

The date of May 12 was chosen in memory of the nurse Florence Nightingale (born 12 May 1820), founder of the first modern school of nursing and who fought for the rights of people who suffered disabilities in the Crimea War.
It is thought that Florence Nightingale suffered from fibromyalgia or chronic fatigue syndrome for much of her life.
In tribute to this pioneer of modern nursing, May 12 also marks the International Day of Nurses.

For several years, on the FM and CFS/ME Awareness Day, orange ribbons were distributed as a color linked to the demand for equal opportunities for people with disabilities; since, internationally, it's been established the ribbon went dark blue or purple as a symbol of these syndromes, without having finished defining a color that embraces all. Generally, we might find more purple or purple ribbon tie to FM, and blue (in various shades) more linked to CFS/ME. Regarding MCS, yellow, green or a combination of yellow and green ribbons have been used.

In 2005, in order to keep the meaning of the first ribbon that we used while we were adopting the blue colors that were used in other countries, the image of a blue ribbon on an orange background was designed to represent both.

Llaç Dia Mundial Fibromiàlgia i SFC/EM

In the commemorative acts of the FM and CFS/ME (and also of MCS and EHS) Awareness Day, as well as in other events of dissemination and social awareness, these ribbons are distributed between citizens, in order to give more visibility to these syndromes and in order to ask for a gesture of solidarity and support for the people affected.

Below you can find the schedule of conferences and events of ACAF, as well as events planned by other organizations and communities on the occasion of the Awareness Day.

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ACAF Conferences and Events program

May 2019:

PALAMÓS - May 2

TERRASSA - May 2

EL VENDRELL - May 2

MONTGAT - May 8

II Jornada sobre Avenços en Síndromes de Sensibilització Central/
II Jornada sobre Avances en Síndromes de Sensibilización Central

BARCELONA - May 9

REUS - May 13

TERRASSA - May 13

GIRONA - May 15

TORROELLA DE MONTGRÍ - May 29

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Information stands for
FM and CFS/ME, as for other CSS (SQM-EHS) Awareness Day

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Other FM and CFS/ME Awareness Day events:

 

II JORNADA SOBRE AVENÇOS EN LES
SÍNDROMES DE SENSIBILITZACIÓ CENTRAL /
II JORNADA SOBRE AVANCES EN LOS
SÍNDROMES DE SENSIBILIZACIÓN CENTRAL
- May 9th 2019 -

 

FIBROMYALGIA DAY ON THE
HOSPITAL DEL MAR

- May 10th, 2019 -

 

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IMPORTANT NOTICE:

ATTENDEES ARE ASKED TO BRING NO PERFUMES,
COLOGNE, BODY SPRAY OR AFTER-SHAVE,
IN ORDER TO PROTECT THE HEALTH OF PEOPLE
WITH MCS, CFS AND FM


PLEASE KEEP YOUR MOBILE PHONE OFF,
OR IN AIRPLANE MODE, WITHIN THE SPACE OF THE ACT,
IN ORDER TO PROTECT PEOPLE AFFECTED BY
ELECTROMAGNETIC HYPERSENSITIVITY

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ACAF conferences
and events program:
- May 2019 -

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PALAMÓS :
(Baix Empordà)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the workshops
:

Afternoon of therapeutic activities
for Fibromyalgia of Baix Empordà

16:30h.Tailored yoga session
by Eduvigis Rubio

18h. Biodanza workshop,
by Noemí Carrera

19h. Relaxation workshop with Tibetan bowls,
by Gema Jaramillo

Presented and coordinated by Núria Pérez,
psychologist specialized in CSS and chronic pain


Thursday, May 2, 2019, at 4:30 p.m.

Ambulatorio de Palamós
C/ Hospital, 17 (edifici Fleming)
PALAMÓS

 

Organized by:

ACAF - Baix Empordà
Tel. 696.932.180

 

in collaboration with:

Ajuntament de Terrassa

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TERRASSA :
(Vallès Occidental)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the talk
:

 

Contaminants domèstics
i ambientals inadvertits:
Mesures de prevenció en les SSC
i per a la població general

 

by:

Anna Font
Psychologist
Expert in MCS and environmental health


Thursday, May 2, 2019, at 6:30 p.m.

Centre Cívic Montserrat Roig
Avinguda de Barcelona, 180
TERRASSA

 

Organized by:

ACAF - Terrassa
Tel. 619.255.770


with the support of:

Ajuntament de Terrassa    Departament de Salut

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EL VENDRELL:
(Baix Penedès)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the talk
:

 

Conviure amb les
síndromes de sensibilització central
(fibromiàlgia, síndrome de fatiga crònica/EM,
sensibilitat química múltiple
i electrohipersensibilitat)

 

by:

Maite Ribera
Diploma in Nursing
Presidenta of the ACAF

Anna M. Rovira
Patient expert in MCS and EHS
Territorial Coordinator of the ACAF


Thursday, May 2, 2019, at 7:30 p.m.

Centre Cívic L'Estació
Avinguda d'en Jaume Carner, 1
EL VENDRELL

 

Organized by :

ACAF - Baix Penedès
Tel. 619.256.604

 

with the support of :

Generalitat de Catalunya - Departament de Salut

 

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MONTGAT:
(Maresme)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the talk
:

 

Relacions familiars en les
síndromes de sensibilització central
(fibromiàlgia,
síndrome de fatiga crònica/EM,
sensibilitat química múltiple
i electrohipersensibilitat)

 

by:

Amàlia Nolla
Nurse Case Manager
Fibromyalgia and CFS / ME Unit
Hospital de Badalona - BSA


Wednesday, May 8, 2019, at 6:30 p.m.

Biblioteca Tirant Lo Blanc
Ronda Països Catalans
MONTGAT

 

Organized by:

ACAF - Maresme
Tel. 650.405.745


with the support of:

Ajuntament de Terrassa

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BARCELONA :
(Barcelonès)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the
:

 

II Jornada d'Avenços en
Síndromes de Sensibilització Central /
II Jornada de Avances en
Síndromes de Sensibilización Central
II Conference of Advances
in Central Sensitization Syndromes

Fibromyalgia,
Chronic Fatigue Syndrome / ME
and Multiple Chemical Sensitivity

 

PROGRAM:

16.00h. WELCOME:

Sra. Gemma Tarafa i Orpinell
Comisionada de Salud
del Ayuntamiento de Barcelona

 

INAUGURATION OF THE DAY:

Dra. Sara Marsal Barril, directora de la Jornada
Sra. Maite Ribera Crusafont, presidenta de la ACAF
Sr. Jordi Calm Medina, presidente de la
Plataforma FAMILIARS FM-SFC-SQM

16.30 - 18.00h. FIRST HALF:

Moderadora: Dra. Sara Marsal Barril.
Directora del Servicio de Reumatología.
Hospital Universitario Vall d'Hebron.

- 16.30h. Creencias en Fibromialgia: Mito o Realidad

A cargo de: Dra. Miriam Almirall Bernabé
Reumatóloga
Unidad de Especialización en
Síndromes de Sensibilización Central
del Hospital Universitario Vall d'Hebron.

- 17.00h. Teràpia multicomponent en Fibromiàlgia;
una experiència a l'Atenció Primària

A cargo de: Dra. Rosa Caballol Angelats
Médica de familia
Unidad de Especialización en
Síndromes de Sensibilización Central
de las Terres de l'Ebre

- 17.30h. Formació en SSC a l'Atenció Primària

A cargo de: Dra. Maria Badenes
Médica de familia
Unidad de Especialización en
Síndromes de Sensibilización Central
del Camp de Tarragona

 

18.00 - 18.30h. PAUSE - REST

 

18.30 - 20.00 SECONG HALF: 

Moderador: Dr. José Alegre Martin.
Médico internista.
Unidad de Especialización en
Síndromes de Sensibilización Central
del Hospital Universitario Vall d'Hebron

- 18.30h. Síndrome del Intestino Irritable

A cargo de: Dr. Javier Santos Vicente
Gastroenterólogo
Servicio del Aparato Digestivo.
Hospital Universitario Vall d'Hebron

- 19.00h. Avances en el Síndrome de Fatiga Crónica

A cargo de: Dr. Jesús Castro Marrero
Bioquímico. Unidad de Investigación en Fatiga Crónica.
Vall d’Hebron Research Institute.

- 19.30h. Impacte de la Sensibilitat Química Múltiple
dins les Síndromes de Sensibilització Central

A cargo de: Dr. Joaquim Fernàndez Solà
Médico internista.
Unidad de Especialización en
Síndromes de Sensibilización Central
del Hospital Clínic de Barcelona.   

20:00h. CLOSING:

Sra. Carme Bertral López
Secretaria de Atención Sanitaria y Participación
del Departament de Salut de la Generalitat de Catalunya


Thursday, May 9, 2019
Auditori AXA
Avenida Diagonal, 547 (L'Illa Diagonal)
BARCELONA

 

Program in pdf

 

Organized by:

Vall d'Hebron Campus Hospital

Palamós

ACAF

 

with the support of:

Ajuntament de Barcelona   Generalitat de Catalunya - Departament de Salut

 

In collaboration with:

Supermercats Veritas      Supermercats Veritas

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REUS:
(Baix Camp)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the
act:

 

Illumination of the Capsa Gaudí
in commemoration of
Fibromyalgia and CFS / ME
and other CSS
Awareness Day

 

with the participation of:

Banda de cornetes i timbals Rosa de Reus


Monday, May 13, 2019, at 9:00 p.m.

Plaça del Mercadal
REUS

 

Organized by:

ACAF - Baix Camp
Tel. 699.308.919


In collaboration with:

Ajuntament de Terrassa

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TERRASSA:
(Vallès Occidental)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the
:

 

Tertulia with Dr. Mònica Faro
on fibromyalgia and other
central sensitization syndromes

 

Dra. Mònica Faro
Family doctor
specialized in SSC


Monday, May 13, 2019, at 4:30 p.m.

Centre Cívic M. Aurèlia Capmany

Avinguda Àngel Sallent, 55
TERRASSA

 

Organized by:

ACAF Terrassa

 

with the support of :

Ajuntament de Terrassa  Generalitat de Catalunya - Departament de Salut

 

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GIRONA :
(Gironès)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the talks
:

 

Breu presentació del circuit assistencial
per a l'a
tenció de la fibromiàlgia i d'altres
síndromes de sensibilització central

a la Regió Sanitària de Girona

by:

Nina Martí
Nurse case manager and EU coordinator in CSS
Regió Sanitària de Girona

Patrícia Reyner
Rheumatologist
Director of the Rheumatology Service Unit
Hospital de Girona Dr. Josep Trueta
Hospital Santa Caterina

 

 

Estat actual del diagnòstic i tractament
de la fibromiàlgia i d'altres
síndromes de sensibilització central

(SFC/EM - SQM)

by:

Ramon Valls
Rheumatologist
Director of the Rheumatology Service Unit
Hospital de Palamós

Carles Salvadó
Bachelor of Sports Science

Núria Pérez
Clinical psychologist
specialized in fibromyalgia and CSS


Wednesday, May 15, 2019, at 7:00 p.m.
Auditori Josep Irla
Plaça Pompeu Fabra, 1
GIRONA

 

Organized by:

Palamós

ACAF

 
In collaboration with:
Departament de Salut - Regió Sanitària de Girona
Regió Sanitària de Girona

 

with the support of :

Ajuntament de Torroella de Montgrí     DipSalut

 

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TORROELLA DE MONTGRÍ :
(Baix Empordà)

On the occasion of
Fibromyalgia and CFS/ME Awareness Day,
as of other CSS 
(MCS - EHS),
we are pleased to invite you to the workshop
:

 

Parlem d'alimentació
per a la millora de la salut

 

by:

Nuri Puig
Naturopath and therapist

and:

Nuri Pérez
Clinical psychologist
specialized in fibromyalgia and CSS


Wednesday, May 29, 2019, at 6:30 p.m.
Museu de la Mediterrània
Carrer d'Ullà, 31
TORROELLA DE MONTGRÍ

 

Organized by:

ACAF - Baix Empordà
Tel. 696.932.180

 

with the support of :

Ajuntament de Torroella de Montgrí     DipSalut

 

In collaboration with:

Museu de la Mediterrània

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INFORMATION STANDS 2019:

Taula informativa Dia Mundial Taula informativa Dia Mundial Taula informativa Dia Mundial Taula informativa Dia Mundial

On the occasion of the commemoration of the
Fibromyalgia and Chronic Fatigue Syndrome / Myalgic Encephalomyelitis,
as well as other SSC (MCS-EHS)

International Awareness Day,
ACAF territorial activities centers dispose information tables in different points
of its area of influence to bring awareness of the disease to the public
:

[SUBJECT TO CHANGE BY WEATHER
CONFIRM BY PHONE . THANK YOU
]

 

May 4:

IGUALADA
Plaça de Cal Font
Schedule: 10:30 - 14:30h
More information: 650 405 683

 

May 10:

HOSPITALET DE LLOBREGAT
Mercat de Bellvitge
Schedule: Morning
More information: 696 924 046

 

May 11:

BARCELONA
FIRA BIO-CULTURA
Palau Sant Jordi - Zone 7
Schedule: all day
More information: 629 775 058

SOLSONA
FIRA DE SANT ISIDRE
Carrer Castell (davant de l'Ajuntament).
Schedule: Morning.
More information: 699 308 918

VILAFRANCA DEL PENEDÈS
Davant de la Capella de Sant Joan.
Schedule: 10 - 14h
More information: 681 362 367

VILANOVA I LA GELTRÚ
Rambla Principal.
Schedule: all day
More information: 646 311 144

Tornar a l'enunciat

May 12:

TERRASSA
FIRA MODERNISTA
Passeig del Comte d'Egara
Schedule: all day
More information: 619 255 770

VIC
Hospital Universitari de Vic 
Francesc Pla el Vigatà, 1
Schedule: 10 - 13h.
More information: 648 140 054

 

May 13:

BARCELONA - LES CORTS
Biblioteca Les Corts - Miquel Llongueras
Travessera de les Corts, 58
Schedule: Morning
More information: 650 405 701

BARCELONA – SANT ANDREU
Plaça Orfila (08030)
Schedule: 10:30 - 19h
More information: 619 258 939

REUS
C/ Sant Joan (davant l’hospital vell)
Schedule: 10 - 14h
More information: 699 308 919

Tornar a l'enunciat

May 14:

TARRAGONA
Hospital Joan XIII
Schedule: 10:30 - 14:30h
More information: 638 235 128

SABADELL
Plaça del Doctor Robert.
Schedule: 10 - 20 h
More information: 696 820 616

SANT ADRIÀ DEL BESÒS
Plaça de Queviures (Mercat de Sant Adrià).
Schedule: 9 - 13:30h.
More information: 648 049 713

 

May 16:

BARCELONA
Hospital de Sant Pau - Consultes externes
Schedule: 10 - 14h
More information: 629 775 058

MANRESA
Hospital St Joan de Déu
Consultes externes
Schedule: 10 - 14h.
More information: 650 405 652

 

May 17:

EL VENDRELL
Rambla del mercat
Schedule: 10 - 13h
More information: 619.256.604

 

May 18:

BARCELONA – NOU BARRIS
FESTA MAJOR DE NOU BARRIS
Plaça Virrei Amat
Schedule: all day
More information: 699 426 469

BARCELONA - SANTS
FIRENTITATS 2019
Carretera de Sants
Schedule: all day
More information: 648 155 348

 

May 25:

FIGUERES
7a FIRA DE LA GENT GRAN
Rambla de Figueres
Schedule: all day
More information: 696 941 024

 

 

TBA:

SANT CUGAT DEL VALLÈS
Plaça dels Quatre Cantons
Schedule: 10:30 - 14h.
More information: 650 405 746

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For more information contact your local activities center
in its territorial LOCATION
(bar on the left of
our web)

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IIa JORNADA SOBRE AVENÇOS EN LES
SÍNDROMES DE SENSIBILITZACIÓ CENTRAL /
IIa JORNADA SOBRE AVANCES EN LOS
SÍNDROMES DE SENSIBILIZACIÓN CENTRAL

II CONFERENCE OF ADVANCES IN
CENTRAL SENSITIZATION SYNDROMES

Fibromyalgia,
Chronic Fatigue Syndrome / ME
and Multiple Chemical Sensitivity

 

- Thursday, May 9, 2019 -

Auditori AXA
L'Illa Diagonal
Avinguda Diagonal, 547
BARCELONA

Organized by:
Unitat de SSC. Hospital Vall d'Hebron
Plataforma de Familiars FM-SFC-SQM
ACAF

 

Program in PDF

Back to index

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FIBROMYALGIA DAY ON THE
HOSPITAL DEL MAR

- Friday, May 10, 2019 -

Organized by:
Hospital del Mar - Parc de Salut Mar

In collaboration with:
Fundació ARED
ACAF

 

Programa en pdf

 

Back to index

________________________

IMPORTANT NOTICE:

ATTENDEES ARE ASKED TO BRING NO PERFUMES,
COLOGNE, BODY SPRAY OR AFTER-SHAVE,
IN ORDER TO PROTECT THE HEALTH OF PEOPLE
WITH MCS, CFS AND FM

PLEASE KEEP YOUR MOBILE PHONE OFF
WITHIN THE SPACE OF THE ACT,
IN ORDER TO PROTECT PEOPLE AFFECTED BY
ELECTROMAGNETIC HYPERSENSITIVITY

See you there !

________________________

 

ACAF is a member of:

Consell Consultiu de Pacients de Catalunya    Taules per les SSC   IAFME

 

 

 

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